Epidermolysis Bullosa (EB)—"The Worst Disease You've Never Heard Of" — is a group of rare genetic disorders that cause the skin and mucous membranes to be extremely fragile. Even minor friction, heat, or trauma can result in painful blisters and open wounds.
debra of America is the leading nonprofit dedicated to improving the lives of those impacted by Epidermolysis Bulloas (EB). We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB.
debra of America distributes wound care supplies, free of charge, to individuals and families with Epidermolysis Bullosa (EB) in the United States. Supplies include bandages, dressings, ointments, and more.
Our EB Nurse Educator is available by phone and email to answer questions and provide guidance to individuals with EB, their family members, the professional community, and the general public.
We provide a full support system to the parents and caregivers of a child with EB, including a free care package with wound care products, age-appropriate items, and educational information.
Nicole Esser
“We will live life one day at a time and won’t let EB beat us.”
Nicole Esser
“We will live life one day at a time and won’t let EB beat us.”
Nicole Esser
“We will live life one day at a time and won’t let EB beat us.”
Nicole Esser
“We will live life one day at a time and won’t let EB beat us.”
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